World Hemophilia Day was started by the World Federation of Hemophilia (WHF) and is annually observed on 17th April. The international community started observing WHD in 1989 and April 17 was chosen to recognize Frank Schnabel’s – the founder of WHF – birthday. World Hemophilia Day is aimed at raising awareness about hemophilia and other bleeding disorders. It also helps to raise funds for patients who cannot afford hemophilia treatment as well as attract volunteers for the World Federation of Hemophilia.
Statistics show that hemophilia A occurs in 1 out of 5,000 male births and about 400 babies are born with the disorder annually. Additionally, an estimated 400,000 people around the world have hemophilia. About 75% of these people are unable to access adequate treatment or have no access to treatment completely. While there is no cure for this bleeding disorder, there are very effective treatment options available.
The 29th World Hemophilia Day focuses on the importance of educating hemophilia patients and the general public about bleeding disorders. The day will also emphasize the importance of proper hemophilia care and treatment. This will be achieved through media events, awareness campaigns, and a host of activities held around the world.