CMT Awareness Month is observed every October to raise awareness about Charcot-Marie-Tooth disease (CMT) – a group of inherited neurological conditions that affect the peripheral nerves. It’s a time for education, visibility, and community action to support the people and families living with this lifelong condition.
What is CMT Awareness Month?
Throughout October, individuals and organisations around the world join together to shed light on Charcot-Marie-Tooth disease. CMT affects around 1 in 2,500 people and leads to muscle weakness, foot deformities, balance problems, and reduced mobility. Awareness Month helps improve understanding of this under-recognised condition, encourages earlier diagnosis, and pushes for better support and treatment. Activities include storytelling campaigns, fundraising events, medical webinars, and social media drives that give voice to those affected by CMT.
When is CMT Awareness Month?
CMT Awareness Month takes place every year in October. Across the month, people take part in virtual and in-person events that help amplify the cause. Some participants take on personal challenges, share daily facts, or host local meet-ups to build support and connection in their communities.
Why CMT Awareness Month Matters
Despite being one of the most common inherited neurological disorders, CMT remains poorly understood by the public and often misdiagnosed by healthcare professionals. Many people wait years for a correct diagnosis. This delay can lead to unnecessary frustration, physical decline, and mental health struggles. Raising awareness helps close this gap – and opens up access to care, equipment, and emotional support. The month is also a rallying point for researchers, advocates, and charities working toward better treatments and, one day, a cure.
How to Get Involved in CMT Awareness Month
Whether you’re living with CMT or simply want to support someone who is, there are many ways to participate:
- Share your story: Post your experience on social media or through a charity’s campaign to help others feel less alone.
- Host or join a fundraiser: From bake sales to sponsored walks, raising funds helps support services and research.
- Educate your network: Send leaflets, links, or infographics to schools, workplaces, and medical practices.
- Light up landmarks: Work with local councils to illuminate buildings in the campaign’s signature colours.
- Connect with others: Join webinars, online forums, or local support groups to share knowledge and encouragement.
History of CMT Awareness Month
Charcot-Marie-Tooth disease was first described in 1886 by three physicians – Jean-Martin Charcot, Pierre Marie, and Howard Henry Tooth. But awareness efforts didn’t gather momentum until patient advocacy groups formed in the late 20th century. CMT Awareness Month was established to bring attention to the challenges people with CMT face, and to drive momentum toward better care and research. Today, it’s marked globally, with coordinated efforts across charities, clinics, and communities pushing the message forward each October.
Noteworthy Facts About CMT Awareness Month
- CMT affects approximately 3 million people worldwide.
- It is a progressive condition, but early diagnosis can help people manage symptoms and maintain independence.
- CMT Awareness Month began as a grassroots campaign by patient groups and has since gone international.
- There are more than 100 different genes known to cause CMT, which is why genetic testing plays a key role in diagnosis.
- Despite its prevalence, many people – including medical professionals – have never heard of CMT.
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#CMTAwarenessMonth, #CMTAwareness, #CMTCommunity
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