World Haemophilia Day 2025

World Haemophilia Day is an international observance dedicated to raising awareness about haemophilia and other bleeding disorders. The day aims to increase understanding of these conditions, promote access to care and treatment, and highlight the importance of early diagnosis. It is a time to support those living with haemophilia and their families, and to advocate for better healthcare policies that address their needs.

What is World Haemophilia Day?

World Haemophilia Day is an annual event that brings attention to haemophilia, a genetic disorder that impairs the blood’s ability to clot properly, leading to excessive bleeding even from minor injuries. The day also focuses on other bleeding disorders, such as von Willebrand disease. The observance is a platform to educate the public about these conditions, to encourage testing and diagnosis, and to support efforts to improve treatment and care for those affected.

When is World Haemophilia Day?

World Haemophilia Day is observed every year on April 17th. The date was chosen to honor the birthday of Frank Schnabel, the founder of the World Federation of Hemophilia (WFH), an organization that has been instrumental in improving the lives of people with bleeding disorders globally.

How to Get Involved

There are many ways to participate in World Haemophilia Day:

• Raise Awareness: Use social media, community events, or educational programs to share information about haemophilia and other bleeding disorders. Highlight the importance of early diagnosis, treatment options, and the challenges faced by those living with these conditions.
• Support Haemophilia Organizations: Donate to or volunteer with organizations that provide support and advocacy for people with bleeding disorders. These organizations work to improve access to care, fund research, and offer educational resources.
• Wear Red: Show your support by wearing red, the color associated with haemophilia awareness. Encourage others to join you and explain the significance of the color to raise awareness.
• Attend or Host Events: Participate in or organize events such as walks, fundraisers, or informational sessions that focus on haemophilia and bleeding disorders. These events can help build community and generate support for those affected.
• Advocate for Better Healthcare: Engage with policymakers to promote improved healthcare policies that ensure access to treatment and care for people with haemophilia and other bleeding disorders. Advocacy efforts can lead to better support systems and resources for those in need.

History of the Event

World Haemophilia Day was established by the World Federation of Hemophilia (WFH) in 1989 to raise awareness about haemophilia and other bleeding disorders. The day was created to draw attention to the needs of people with these conditions and to promote access to adequate treatment and care worldwide. Over the years, World Haemophilia Day has become a significant event in the global health calendar, with various activities and campaigns organized to support the bleeding disorders community and to encourage international collaboration in addressing these health challenges.

Relevant Hashtags

• #WorldHaemophiliaDay
• #HaemophiliaAwareness
• #LightItUpRed
• #BleedingDisorders
• #SupportHaemophilia