National Epilepsy Awareness Month
November 1 - November 30
About National Epilepsy Awareness Month
National Epilepsy Awareness Month is observed every November across the United States, dedicated to raising awareness about epilepsy, reducing stigma, and supporting the millions of people living with seizure disorders. Led by the Epilepsy Foundation and supported by medical organisations, advocacy groups, and communities nationwide, the month encourages education, early diagnosis, and better access to treatment.
What is National Epilepsy Awareness Month?
National Epilepsy Awareness Month (NEAM) is a month-long observance that shines a light on epilepsy, the fourth most common neurological disorder in the world. The campaign is primarily coordinated by the Epilepsy Foundation, which works throughout November to educate the public about seizure recognition, first aid, treatment options, and the daily realities faced by people with epilepsy. NEAM also aims to combat the persistent myths and discrimination that many people with the condition encounter in schools, workplaces, and public life.
When is National Epilepsy Awareness Month?
National Epilepsy Awareness Month runs from Sunday, 1 November to Monday, 30 November 2026. It has been observed annually throughout November since its formal congressional designation in 2003, though awareness efforts in November date back to 1969.
Why National Epilepsy Awareness Month Matters
Epilepsy affects approximately 3.4 million people in the United States, including 470,000 children. Globally, around 50 million people live with the condition. One in 26 Americans will develop epilepsy at some point in their lifetime, and one in 10 will experience a seizure. Despite its prevalence, epilepsy remains widely misunderstood. Many people do not know how to respond when someone has a seizure, and outdated beliefs about the condition contribute to social isolation and workplace discrimination. NEAM provides a critical opportunity to replace fear and ignorance with facts, empathy, and practical knowledge that can save lives. Additionally, Sudden Unexpected Death in Epilepsy (SUDEP) claims the lives of roughly 1 in 1,000 people with epilepsy each year, underscoring the need for greater research and public awareness.
How to Get Involved in National Epilepsy Awareness Month
Whether you live with epilepsy yourself or want to support those who do, there are several ways to make a difference during November:
- Learn seizure first aid — The Epilepsy Foundation offers free online training on how to recognise and safely respond to a seizure. Knowing what to do (and what not to do) can prevent injury and potentially save a life. Never put anything in the mouth of someone having a seizure.
- Wear purple for epilepsy — Purple is the international colour of epilepsy awareness, inspired by the lavender flower which represents solitude, a common feeling among those with the condition. Cassidy Megan of Nova Scotia, Canada, who lives with epilepsy, created the purple day movement to encourage open conversation.
- Share your story — If you or a family member lives with epilepsy, sharing your experience can help others feel less alone and challenge public misconceptions. The Epilepsy Foundation encourages personal stories through their online community and social media channels.
- Donate to epilepsy research — Organisations like CURE Epilepsy and the Epilepsy Foundation fund cutting-edge research into seizure prevention, genetic therapies, and improved treatments. Donations of any size contribute to advancing understanding of the condition.
- Advocate for seizure action plans in schools — Children with epilepsy often face challenges at school. Encourage your local school district to adopt seizure action plans and ensure that teachers and staff receive basic seizure first aid training.
- Host a purple awareness event — Organise a fundraiser, bake sale, or community walk where participants wear purple. These events raise both funds and visibility while building community support for those living with epilepsy.
- Correct misinformation when you hear it — Many people still hold outdated beliefs about epilepsy, such as the myth that people with epilepsy cannot drive, work, or lead full lives. When you encounter these misconceptions, calmly share accurate information to help shift attitudes.
History of National Epilepsy Awareness Month
The roots of epilepsy awareness in November stretch back to 1969, when the Epilepsy Foundation first established November as a focal month for public education about the condition. At the time, epilepsy carried enormous social stigma, and people with the condition were routinely excluded from educational and employment opportunities. The Foundation’s early campaigns focused on dispelling myths and encouraging medical treatment.
In 2003, the United States Congress formally declared November as National Epilepsy Awareness Month, giving the observance official recognition and broader reach. The congressional designation helped to increase media coverage and encouraged healthcare providers, schools, and employers to participate in awareness activities. The Epilepsy Foundation’s annual campaigns have since tackled themes ranging from seizure first aid education to mental health support for people with epilepsy.
The purple ribbon, now synonymous with epilepsy awareness, gained international prominence through Cassidy Megan’s Purple Day initiative, launched on 26 March 2008. While Epilepsy Action’s annual events in the UK complement the American awareness efforts, November remains the primary month for epilepsy education in the United States, with thousands of events held nationwide each year.
Noteworthy Facts About Epilepsy
- Epilepsy is the fourth most common neurological disorder, after migraine, stroke, and Alzheimer’s disease, affecting people of all ages, races, and ethnic backgrounds.
- Approximately 70% of people with epilepsy can achieve seizure freedom with proper medication, though the remaining 30% have treatment-resistant epilepsy that may require surgery or other interventions.
- Historical figures believed to have had epilepsy include Julius Caesar, Alexander the Great, Napoleon Bonaparte, and the author Fyodor Dostoevsky.
- There are over 40 different types of seizures, and not all involve convulsions. Absence seizures, for instance, may look like brief episodes of staring or daydreaming.
- The annual cost of epilepsy in the United States is estimated at $28 billion, including direct medical costs and indirect costs such as lost productivity.
Frequently Asked Questions
What is National Epilepsy Awareness Month?
National Epilepsy Awareness Month is a November observance in the United States that raises awareness about epilepsy, promotes seizure first aid education, and supports research into treatments and a cure for seizure disorders.
When is National Epilepsy Awareness Month in 2026?
National Epilepsy Awareness Month runs throughout November 2026, from Sunday, 1 November to Monday, 30 November.
How did National Epilepsy Awareness Month start?
The Epilepsy Foundation first designated November for epilepsy awareness in 1969. The U.S. Congress officially declared November as National Epilepsy Awareness Month in 2003, formalising decades of advocacy and education.
Spread the Word
Help raise awareness by sharing National Epilepsy Awareness Month with your friends, family, and followers. Use the hashtags #EpilepsyAwareness and #NEAM2026 on social media. The more people who understand epilepsy and know seizure first aid, the safer our communities become.
Related Awareness Days
- World Health Day — Coordinated by the WHO each April, this global health awareness day highlights a different health priority each year, often including neurological conditions.
- National Diabetes Month — Another major November health observance that promotes awareness of a chronic condition affecting millions of Americans.
- Stress Awareness Month — Held each April, this campaign raises awareness about stress and its impact on health, relevant to many people managing chronic conditions like epilepsy.
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